The Cost of Blindness - What it means to Canadians

Saturday, January 31 - Sunday, February 1, 2004
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NEW REPORT TARGETS CANADA’S VISION LOSS CRISIS

“We know where we will be in 20 years…
Our weakness will be failing to act on this knowledge”

TORONTO – October 14, 2004 – According to a hard-hitting new document released today, 10 major barriers exist in preventing, diagnosing, treating and supporting vision loss in Canada. A Clear Vision: Solutions to Canada’s Vision Loss Crisis, presents the findings of worldwide experts who participated in a landmark symposium, The Cost of Blindness: What it means to Canadians, held earlier this year in Toronto.

Among the conclusions addressed, A Clear Vision identifies the following:

  • Poor public awareness about age-related eye diseases and risk factors

  • Limited public awareness about age-related macular degeneration (AMD), the leading cause of vision loss for people over the age of 50

  • Lack of Canadian research on the incidence and prevalence of blindness and visual impairment

  • An aging and declining profession of ophthalmologists to treat eye disease

  • Patient backlog for treatment

  • Inconsistent access to vision-health service

  • Discriminatory access to AMD treatment

  • No standard of care for low vision services

  • Insufficient public access to vision rehabilitation services and assistive devices programs

  • Medical profession grossly underestimates impact of low vision on quality of life

“Given the aging of Canada’s population, vision loss is becoming a more important public health issue. The need to take action to prevent and manage vision loss has never been greater,” says Dr. David Maberley, Associate Professor, Department of Ophthalmology, University of British Columbia, and one of the presenters at the symposium. “This document outlines the causes of age-related vision loss, demonstrates why Canada is in a crisis of vision loss, analyzes the costs of prevention and treatment versus doing nothing, and outlines what we need to do to avert this crisis.”

Canada is currently experiencing an unprecedented surge in age-related blindness. Driven by the country’s aging population, incidences of age-related macular degeneration (AMD), the leading cause of blindness, are soaring as baby boomers reach 50 and 60. Cases are expected to triple within 25 years. Baby boomers are also developing glaucoma and diabetic retinopathy at alarming rates. Chances of developing irreversible, age-related blindness are more than one in four by age 75.

Other research presented in A Clear Vision reveals the real impact of low vision on Canadians’ quality of life.

“People with vision loss are admitted to nursing homes on average three years earlier than those without vision loss. Their risk of falls is doubled, their risk of depression is tripled, and their risk of hip fracture—a leading cause of death in the elderly—is four times as high. Worst of all, those with AMD are at higher risk of death,” says Dr. Sanjay Sharma, Associate Professor & Deputy Head, Department of Ophthalmology, Queen’s University, and another presenter at the symposium.

AMD, the leading cause of vision loss in Canada, affects four times the number of Canadians than those with Alzheimer’s disease and Parkinson’s disease combined, yet disturbingly, the majority of Canadians know little about it.

“Symptoms can progress quickly – in the most aggressive and prevalent form of AMD, the wet form, 75 per cent of vision is lost within the first six months,” says Dr. Patricia Harvey, Assistant Professor, Department of Ophthalmology, University of Toronto; Director, Retina Unit, University Health Network’s Toronto Western Division. “People need to be aware of the risk factors and symptoms of AMD so they can get an early diagnosis. They need to know that AMD can be stabilized, treated, or managed with vision loss aids and support services.”

The document points out that while photodynamic therapy, the only approved treatment in Canada for wet AMD, is proven to slow the progression of the disease for many people, and improve the vision in some, not all provinces equally reimburse it. “This creates an inequity to treatment and means that many people who would benefit are being forced to make a decision to pay for treatment out of their own pockets or go blind,” says Dr. Harvey.

“We want to work with Canada’s government leaders to put vision health on the local, provincial and national agendas,” says Gerrard Grace, Chair, AMD Alliance International. “We now have a roadmap to help shape and guide future policy for health-care funding and support for those with visual loss. It’s time to prevent blindness and help people with vision loss lead productive, rewarding lives.”

Hosted by The Canadian National Institute for the Blind (CNIB), in partnership with Canada’s leading vision health organizations, The Cost of Blindness: What it means to Canadians symposium examined the real costs of vision loss in the areas of health, rehabilitation, quality of life, prevention and access to treatment. It featured national and international experts in the fields of blindness, low vision and epidemiology who unveiled new findings as a first step in developing strategies to lower the prevalence of age-related vision loss and reduce escalating medical costs.

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For further information or to arrange an interview, please contact:
Ellen Woodger at 416-483-2358 or (ellen.woodger@sympatico.ca)